Tuesday, August 16, 2011

our little miracles

Since they were born, our children have amazed us!  They truly are little miracles.

Matt and I have remained strong and positive through this entire process but it hasn't always been easy.  Many people have exclaimed "It is wonderful that the babies are doing so well" and, while we agree, we had to explain "for fighting so much every day they are doing a great job where they are." 


We know we haven't been great at updating about what they have been through so I want to take a little time to share the big events with you of the last eight weeks:

When the babies were born, they both needed to be intibated.  They didn't breath many breaths on their own but the ones they did were very small.  The doctors attempted to extibate them and move them to Compressed Positive Air Pressure (CPAP) on day three but both babies returned to ventilators.

On Day 6 (20 June) I held Zoey for the first time.  We started kangaroo care (skin-to-skin contact between baby and parent) and got thirty minutes together.  While it was the shortest thirty minutes of my life but it was incredible to finally hold her and get to know my baby girl.   

Bryce was extibated on Day 8 (22 June) and was transferred onto CPAP.  He did very well with extibation and was starting to take breaths on his own.   

Getting ready for the transport to Fargo on Day 9 (23 June) was the first time I held Bryce.  I helped to transfer him from one isolette to the other and had just enough time to give him a kiss.  While it was very short it felt great to have my son in my arms for those few minutes, especially before such a big night.

On Day 10 (24 June) Matt got to hold Bryce for the first time!  He was glowing with excitement and Bryce immediately cuddled against him.  It was also a happy moment for me to see my two boys so close together!

Zoey extibated herself on Day 13 (27 June) and was transferred onto CPAP.  This was the third extibation and she did very well with it.  She decided she was ready to continue and let us know...we will be in trouble when she is a teenager!

This day was also the first time Matt was able to hold Zoey.  Again, he was thrilled and she quickly got comfortable.  It was beautiful to see Matt begin to bond with his children.

On June 28th we got rooms at the Ronald McDonald House in Fargo.  They had enough space for Mom to have one room and Matt and I to have another.  The two rooms are connected and have a doorway between them.  The facility is amazing and has more amenities that we could have dreamed of.  Check out their website to learn more about them or donate to a wonderful organization.

Day 18 (July 2nd), my Dad arrived in Fargo for the weekend and met the babies for the first time.  We had a great visit and even though he was scared of the babies he was able to hold both of them during his stay.  It was wonderful to see him and introduce him to his grandkids.

That same day, Bryce came off CPAP and onto blended flow oxygen.  He started at 2 liters of support and did very well with it.  We continued to be amazed with how quickly he came down on his oxygen support.

July 8th (Day 24) Zoey came off CPAP and onto blended flow oxygen.  Like Bryce, she started at 2 liters.  She also did well but took a little more time coming down on her support.

Day 24 was also the first time we were able to have Zoey and Bryce side-by-side.  Mom was able to hold both of them (I wasn't feeling well and they both needed to be loved on) and they cuddled right into each other.  This is the closest they had ever been!

Day 25 (9 July) Matt's parents came out to Fargo and meet their grandkids.  They were able to stay for the week and Syd even went back to Minot for a few days with Matt to work on the house.  They both got to spend lots of time with both babies and even had the opportunity to hold them.  It was a great visit and a joy introducing our children to more family.

July 23rd Bryce came off all oxygen support.  He did really well with the transition and seemed to love not having the tubes in his nose.

On the 25th of July Bryce started nippling (eating from a bottle).  It took him a little while to adjust and he only started by taking about 7mL of his 40mL feeding.  That is still very good for the first time.

Dad also returned to North Dakota the same day to help with the house but made a stop in Fargo to visit his grandkids!

Bryce and Zoey got to meet Uncle Sean on the 30th of July (Day 46).  He had just finished ten months with the Denver campus of Americorps and was on his way back to Virginia.  He made a few day stop in North Dakota to meet his niece and nephew and help with our house. 

Day 48 (1 August) Bryce went into a crib.  It was a slow transition that took about 24 hours of slowly adding more clothes to him while turning down his isolette temperature.  He did really well with the transition and was able to maintain his temperature once he was in the crib.

On the 4th of August, Zoey came off all oxygen support.  However, the next morning she needed to go back on a low-flow of oxygen.  She only received about 10 mL of support but it is enough to make her more comfortable and keep up her oxygen level.

Bryce got his first tub bath on Day 53 (6 August).  While the babies are in the isolette they get a sponge bath inside the isolette so they don't get too cold.  Now that Bryce was in a crib he got a "real" bath and he loved it.

On the 7th of August, Zoey started nippling.  She took 10 mL the first time which is great!  We thought she would do really well with it since she had been cueing for several weeks.

In addition all of this, Zoey has had two blood transfusions and Bryce has had one, both of them have been on meds to jump start their red blood cells to replenish themselves, both have been under lights for jaundice, and both of them have been working through some reflux problems. Yet, through all this they are continuing grow and develop beautifully.  God truly does amazing things!

Also during the last eight weeks, my mom, "Mimi", has been able to be out in North Dakota with us.  It has been a huge blessing to have her here.  She has helped with the house, hospital runs, late night break-downs, and everything in-between.  Having her here has made a stressful situation more relaxing.  Plus, the babies love her...they both open their eyes when she talks and smiles when she holds them.  I am truly blessed to have such a supportive mom.

While it has been a long eight weeks, we have been extremely blessed to watch God perform miracles in front of our eyes.  The well wishes and prayers have been extremely helpful and we now have healthy babies that are continuing to grow and develop as they should.  While it will still be several more weeks we are getting excited about getting them home!
.katherine.

4 comments:

  1. Wow. I knew about most of this, but seeing it all in one place is amazing. What a journey. I'm so glad the beebops are coming along as well as they are. They look stronger and healthier in every picture. I couldn't be happier for you and Matt!

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  2. You are so strong. You look so happy in all of your pictures; one would never know the struggles you're going through. You're in my and Jerry's thoughts and prayers.

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  3. Beautiful!!!!!!! Love this post, Bryce & Zoey will love it one day. God has heard our prayers!
    You & Matt have been through more than anyone could begin to imagine...thanks for sharing your journey in such a moving way. Still wiping away the tears..especially on the Mimi part :)Just know you have all been on my mind and in my prayers constantly from before day 1 and will continue to be.
    Love you so much! Aunt Nancy

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  4. Wow, what an amazing experience you and your family have been through! What strength and courage you have. You are a bright shinning light Katherine! Those babies are so beautiful!

    Much Love,

    Sarah DeMatos

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